Pathfinders Neuromuscular life

Blogs, News and Features from the Neuromuscular Community

My new role as a Trustee

A photo of Kerry Thompson, blonde in a blue and black flowery top and a black electric wheelchair

Hello everyone, my name is Kerry Thompson I’m a disability blogger and activist. it’s lovely to meet you all, I’m super excited to announce my new role within the Pathfinders Neuromuscular Alliance as a Trustee I looking forward to taking on this new challenge/role, sharing my knowledge and experiences along the way. 

A little about myself I’m a blonde in charge of a wheelchair with a rare form of muscular dystrophy I was diagnosed at 24 I’m now 41 I know my youthful looks clearly make me look 29! – 

My campaigning work has been an incredible journey and given me so much more than I could ever have dreamt from becoming an ambassador for purple Tuesday and being named on the shaws trust disability 100 list 2019 and a finalist for 2020, winning awards with MDUK for campaigner of the year and the BBC Three counties radio people award for diversity and equality for the work that’s not just become my favourite subject it’s also given me the nickname with a few friends ‘The toilet Queen’ working alongside Tesco’s in building close to 100 changing places toilets within their stores which I’m extremely proud to be apart of. Also being involved in the changes made to the building legislation for all new large build to now include changing places facilities. 

I sit on the accessible housing advisory board for housing association Habinteg where I was given the opportunity to speak and share my story with the housing minister on why accessible housing is so important. I’m involved in several other campaigns that are close to my heart, I’m sure when you get to know me more you’ll see why I’m so passionate and really get my wheels stuck into a campaign. 

I want to make a positive difference to a world that’s not inclusive to all as well as giving something back to the community I don’t want someone in the same position as myself in 10 years time still fighting for the right to go to the toilet, live an independent life and have an accessible home to just be able to live their lives in an inclusive world. 

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