Transport – introducing your options

Public transport Buses Buses are normally expected to be wheelchair accessible nowadays, although rail replacement buses are not. Local buses can be quite narrow, and the wheelchair space can be quite small, but it should exist. Sometimes there can be disagreements about whether a wheelchair user or pushchair have priority in the wheelchair space. Legally […]

Managing Your Care – the basics

There are two main avenues of care funding; Social Services, and Continuing Healthcare. Social services fund care for people whose needs are primarily around nutrition, personal care, dressing, and daily life, whereas Continuing Healthcare (CHC), which is NHS funded, is more for the management of medical conditions. While there are no clear-cut factors that define […]

Feeding Tube FAQ

A diagram of a PEG feeding tube

What is a feeding tube, and why might you need one? A feeding tube delivers a nutrient feed directly into the stomach, allowing an adult with a neuromuscular disorder to meet their nutritional needs without having to chew and swallow food. There are three main reasons why adults with neuromuscular disorders may require a feeding tube: […]

Duchenne Nutrition Timeline

circular green text saying Healthy Eating surrounding two apples and a banana in the shape of a smiley face

As Duchenne progresses, nutritional issues also change. During childhood, especially when steroids are used and at the time when children start using a wheelchair, there is a particular risk of obesity which can impede breathing and reduce muscle function and mobility. Dietary advice to assist with maintaining a healthy weight is required. In teenage or […]

How to Eat a Healthy Diet

text saying Healthy diet over a grid showing various cartoon styled foods

In general, adults with neuromuscular disorders should strive to have a healthy diet balanced in energy, protein, fluid, calcium, vitamin D, and other nutrients. Adults should aim to include a variety of foods from the five main food groups: fruit; vegetables; meat, poultry and alternatives; dairy and breads and cereals. MICRO-NUTRIENTSAdults are at risk of […]

Nutraceuticals and dietary supplements in DMD

A photo of various Probiotics, pills, and dietary supplements

There have been a range of nutritional supplements investigated in boys with DMD. The most promising supplement is creatine monohydrate. A systematic literature review (considered the highest level of evidence) demonstrated that creatine supplementation had some short to medium term benefits with regard to strength and muscle mass in Muscular Dystrophy (Davidson et. al., 2015). […]

Maintaining a healthy weight

A photo of stand on style weighing scales

Energy balance is an important concept for understanding weight management. The body uses energy all the time, even when at rest or sleep. Energy balance is when the energy obtained from diet (measured in calories) meets the energy that the body needs. As an individual with neuromuscular disorders stops walking, energy needs often decrease making […]

Mounting smart-phones and tablets to your wheelchair

A photo of a standard manual wheelchair with a Daessy Mount attached

Mounting solutions in order to use a smart phone or tablet, it can be useful to mount the device, fixing it in position on a wheelchair or bed. There are many ways to do this – mounts from accessible technology or mobility shops will generally be around £300-£700 and mounts on Amazon or Ebay around £20 – […]