Getting used to living with a tracheostomy

BOBBY SHEARER sitting outside with his tracheostomy showing

BY BOBBY SHEARER So far my health during my life with Duchenne has been pretty dope. I’ve never had any real problems apart from the obvious. That changed a bit early last year when I had a bad chest infection, where I had to have a trache fitted. A trache (or tracheostomy) is a small […]

Meet the North East Disability Sports Awards’ Male Personality … Harry Thompson

A photo of Harry Thompson holding an award with many more in a display case behind him and medals hanging on the wall

BY RYAN DACK The North East Disability Sports Awards were set to take part in April – a celebration of the marvelous achievements and contributions that athletes,coaches, clubs and schools have made to disability sports across the region. The event was to take place at the Princess Alexandra Auditorium in Yarm on April 2. Due […]

Welcome to Jamie, our new CEO (job share)!

Jamie Hale, co-CEO, in a blue plaid shirt, in a black electric wheelchair. They have dark red hair and beard, and bright red glasses

Hi! I’m Jamie Hale, and I’m the new job-share CEO, working with Jon Rey-Hastie as we take Pathfinders forward into the future. I’m delighted to be working for Pathfinders, having first benefitted from the guides over the past few years, and then had a wonderful experience at the mini-conference this summer. To be appointed into […]

CREATE: My Pandemic Story – Jamie

A photo of Jamie Hale sitting outside in front of a fountain

Jamie’s Pandemic Story In this series of articles, we will shine a light on the creativity, productivity and positivity that has emerged in our communities during lockdown. In this first article, our CEO Jamie talks about their experiences of writing during lockdown When lockdown started, I think I went into it in a better position […]

Trustee in me

A photo of Sarah Rose

I’m Sarah and I am delighted to be joining Pathfinders Neuromuscular Alliance as a trustee. I have Ullrich CMD also know as Collagen VI myopathy. I have volunteered with my local Citizens Advice on the Research & Campaigns Team for the past 13 years and with MDUK, chiefly as one of the mods on their […]

Rob’s Gardening Guide – Starting off Small

ROBERT SLEIGHT sitting in front of his greenhouse

BY ROBERT SLEIGHT If you have just decided that you want to start a vegetable garden then good for you. At this point there is one really good piece of advice I would like to give you to start you on your gardening journey. That piece of advice is to start small. Don’t try and […]