jonpathfinders
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Forced into a Care Home: This Could Have Been Me
BY SARAH ROSE, Chair of Trustees of Pathfinders Neuromuscular Alliance When I read about Lucinda Ritchie, a 33-year-old disabled woman moved to a nursing home against her will, I felt something deeper than concern. I…
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Pathfinders appoints permanent CEO
We are excited to share some fantastic news with our Pathfinders community — Jon Hastie has been appointed as the permanent CEO of Pathfinders Neuromuscular Alliance. Many of you will know Jon not only as…
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Research Summary: Mental Health in Duchenne
BY QUINN CLARK Sometimes it feels like your physical disability rules your life. It becomes the subject of so many conversations and appointments, you might forget to take care of yourself in other ways. But…
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Do you have what it takes to lead Pathfinders?
FROM THE TRUSTEES As you probably already know, our CEO Jamie Hale stepped down in October last year after several years in the role. Jamie has shared their thoughts about their time at Pathfinders in…
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Reflecting on My time at Pathfinders
BY JAMIE HALE Hello! It feels odd to be writing this now, four months after finishing at Pathfinders. Some major life events just as I was leaving meant that I never quite left the way…
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Pathfinders Christmas Message
As the festive season arrives, we want to take a moment to thank each and every one of you for your incredible support throughout the year. Your involvement, encouragement, and generosity have been instrumental in…