‘Who Cares?’ – Sanjeev talks care agency pros & cons

My name is Sanjeev and I am a journalist, producer, and development worker for Pathfinders, with Duchenne Muscular Dystrophy. Like many with a neuromuscular condition, I rely on other people like carers, personal assistants, family, and friends to go about my regular day whether going out or staying in, as well as for personal care. […]

‘Who Cares?’ A care & support series

In the next few months development worker, Sanjeev and guests will be sharing their thoughts and opinions in a series of articles about all things care-related. The articles will cover a range of topics around care and support as well including overviews, guidelines pros and cons and guest posts. Areas include: How to get care […]

‘Who cares?’ Sanjeev talks top tips for organising care

As someone living with Duchenne Muscular Dystrophy or anyone with a muscle-weakening condition, care is vital to our day-to-day lives. From getting ready in the morning to going out with friends and going to work, you need to make sure your care is organised and correct for you! It can be difficult and tiring to […]

Managing Your Care – the basics

There are two main avenues of care funding; Social Services, and Continuing Healthcare. Social services fund care for people whose needs are primarily around nutrition, personal care, dressing, and daily life, whereas Continuing Healthcare (CHC), which is NHS funded, is more for the management of medical conditions. While there are no clear-cut factors that define […]