Loneliness
Loneliness can be a strange thing. You can be surrounded by people and still feel lonely, sometimes painfully so. Let’s try and explore why this may be the case. I believe that one of the problems may be that people tend to treat being alone the same as being lonely. I don’t think that this […]
DMD Cardiac Care
Am I Suffering¿
One of the best things about a peer led organisation is that everyone has a voice. Pathfinders Neuromuscular Life is a blog written by members of our community for members of our community. Our blog can be used to share practical tips or personal experiences but it is important to remember they are not necessarily […]
Powerchair Sports – My Powerchair Football Story
Liam Ashton My name is Liam Ashton and I’ve been playing powerchair football for 6 years and power hockey for 10 years at Greenbank Sports Academy in Liverpool. I have DMD, but that doesn’t stop me playing the sports I love. I was introduced to power football in 2016, when my power hockey coaches, Gerry […]
Rare Disease Day 2022
On the 28th of February 2022, Pathfinders will be celebrating Rare Disease Day! Rare Disease Day is a global movement that works towards equity for people living with a rare disease. Since its creation in 2008, it has played an important part in building a diverse international community that is global, diverse and united. Rare […]
‘Who Cares?’ – Sanjeev talks care agency pros & cons
My name is Sanjeev and I am a journalist, producer, and development worker for Pathfinders, with Duchenne Muscular Dystrophy. Like many with a neuromuscular condition, I rely on other people like carers, personal assistants, family, and friends to go about my regular day whether going out or staying in, as well as for personal care. […]
‘Who Cares?’ A care & support series
In the next few months development worker, Sanjeev and guests will be sharing their thoughts and opinions in a series of articles about all things care-related. The articles will cover a range of topics around care and support as well including overviews, guidelines pros and cons and guest posts. Areas include: How to get care […]
‘Who cares?’ Sanjeev talks top tips for organising care
As someone living with Duchenne Muscular Dystrophy or anyone with a muscle-weakening condition, care is vital to our day-to-day lives. From getting ready in the morning to going out with friends and going to work, you need to make sure your care is organised and correct for you! It can be difficult and tiring to […]
Alex James interview – A Year On
Development Worker Sanjeev Mann has a chat with Alex James about all things music, current releases, Duchenne Muscular Dystrophy, plans for the future as well as aims as a musician.
Mental health, Jamie Hale (part 2)
Planning my day for good mental wellbeing. In yesterday’s blog I talked about having struggled with depression and adapting to disability, and how I slowly got on top of, and overcame, aspects of it. This article is less about mental illness, and more about mental health – because we’ve all got that. If I want […]