Research & Treatments
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Bone Health Guidance Video Launch
Duchenne and Bone Health: updated guidanceBone health is often overlooked in adults living with Duchenne muscular dystrophy –but it’s essential. To help explain its importance, we’re sharing some guidance in theform of short, animated videos.…
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Bone Health and Management Guidance Update
Dr Jarod Wong from the University of Glasgow together with a group of clinical experts from the UK, with support from Action Duchenne and Muscular Dystrophy UK developed the UK NorthStar network DMD-specific adult and…
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Self-Reliant Independency with DMD in Japan
When it comes to discussing muscle-weakening conditions, it’s easy to only think about local impact, such as accommodations available in your town, city, or country. But individuals with muscle-weakening conditions exist all across the world,…
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My Life with Ventilation: A Cripping Breath and Pathfinders Event
In popular culture, ventilation—or having air provided to your lungs with support from a machine—gets a bad rap. In movies and TV shows ventilation is often shown as a last-resort option for those who are…
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Employment in Patients with Neuromuscular Conditions
Jobs. Employment. Making a living. These are all phrases which (quite rightly) make most people break out into a sweat. The act of searching, applying, and interviewing for a job can be an exhausting, confusing…
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Perspectives of Young People with Neuromuscular Conditions on Education
Complications of Having a Neuromuscular Condition Having a neuromuscular condition can complicate many aspects of life, including education and career prospects. Between keeping up with schoolwork, missing time in the classroom due to illness and…