Research Summary
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Research Unravelled by Pathfinders Series #1:
Reviewing social care for adults with neuromuscular conditions. Overview: When it comes to support, it’s medical needs first, then social care afterwards. At least, that’s the message often received by those who attempt to interact…
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Research Round Up Vol. 1: Jan-Mar 2026
If you are interested in being involved, want to work with the Research Team, or have recommendations for research funding for Pathfinders Neuromuscular Alliance, please email info@pathfindersalliance.org.uk or Suzanne@pathfindersalliance.org.uk. You can follow the link below…
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Bone Health Guidance Video Launch
Duchenne and Bone Health: updated guidanceBone health is often overlooked in adults living with Duchenne muscular dystrophy –but it’s essential. To help explain its importance, we’re sharing some guidance in theform of short, animated videos.…
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Bone Health and Management Guidance Update
Dr Jarod Wong from the University of Glasgow together with a group of clinical experts from the UK, with support from Action Duchenne and Muscular Dystrophy UK developed the UK NorthStar network DMD-specific adult and…
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Self-Reliant Independency with DMD in Japan
When it comes to discussing muscle-weakening conditions, it’s easy to only think about local impact, such as accommodations available in your town, city, or country. But individuals with muscle-weakening conditions exist all across the world,…
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My Life with Ventilation: A Cripping Breath and Pathfinders Event
In popular culture, ventilation—or having air provided to your lungs with support from a machine—gets a bad rap. In movies and TV shows ventilation is often shown as a last-resort option for those who are…