By coming together as a community, we can connect, share experiences and resources, and work together to change the future for people with muscle-weakening conditions.
What’s On at Pathfinders
Upcoming Events
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Test Event 03
More details →: Test Event 031st August 2028
This event is set in the future, so we can see what it could look like on the page.
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Test Event 02
More details →: Test Event 021st July 2027
This event is set in the future, so we can see what it could look like on the page.
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Test Event
More details →: Test Event1st June 2027
This event is set in the future, so we can see what it could look like on the page.
If no upcoming events are shown, you can find out what we have coming up by checking our social media below:
Pathfinders on Facebook
All members of Pathfinders have access to our Facebook group where they are able to both socialise and ask questions or share advice about living with a neuromuscular condition. This group is also used to share important information about Pathfinders and to spread the word about upcoming UpLift events.
PEER RESEARCH STEERING GROUP
Pathfinders operates a Peer Research Steering Group, working alongside our Research Officer to guide the directions for our academic work. As part of the Peer Research Steering Group you will develop research projects and write academic articles.
Additionally, no academic experience is required to join our Peer Research Steering Group, but we also welcome people with an academic background. To apply, tell us about yourself and why you’re interested in research.
Research
Pathfinders is actively engaged in research, including carrying out our own work exploring transition to adulthood with Duchenne Muscular Dystrophy, but also taking part in consultancy with pharmaceutical companies looking to develop treatments for muscle-weakening conditions. We also work on academic research where we can see a benefit for our members.
UpLift
Pathfinders’ space for young people living with a muscle-weakening condition. Your life, your way!
UpLift CONNECT provides young people with muscle-weakening conditions a comfortable and understanding environment in which they can express their social side, alongside others who have a similar or the same condition as themselves.
UpLift EMPOWER is an opportunity for you to meet our more experienced community members with muscle weakening conditions to ask them your burning questions in a supported setting online.
UpLift ACTION helps you create positive change for people with muscle weakening conditions. Through various activities both online and IRL you will develop many important skills to support you in removing potential barriers.
Join Pathfinders
As an organisation, Pathfinders is led by our members – and we offer all sorts of exclusive benefits, from online peer support spaces to advocacy and advice services and community events. To join Pathfinders, please click the button to apply below:
Jobs and Volunteering
Pathfinders prioritises recruiting people with muscle-weakening conditions, so if you’re looking for work, keep a close eye on our website, and see if anything comes up. As well as regular employment, there are also often freelance roles available.
We also have a range of voluntary opportunities, from consultancy for organisations to social media and outreach, media ambassadors to authors and researchers.