Pathfinders Neuromuscular Alliance is a User-Led Organisation , meaning it is run by and for young people and adults with neuromuscular conditions. We can only succeed if everyone gets involved!
Anyone can become a Pathfinders member, meaning we’ll keep you up-to-date with everything that’s going on. It also means free tickets to all our events and some extra freebies too!
In addition, adults with neuromuscular conditions can become formal Voting Members who can vote on things like who becomes a trustee and certain charity governance matters.
If you would like to register you can do so here
Pathfinders relies entirely on grants and donations to be able to support adults living with muscle-weakening conditions. We need your help to continue our work!
If you can help us fundraise, please check out our fundraising resources to help you get started.
Pathfinders is always looking for volunteers to help us support adults with muscle-weakening conditions. From time to time we also have opportunities to join the growing staff team at Pathfinders and make a real difference in your work.
The board of trustees is the highest level of decision-making in Pathfinders. Trustees make the final decisions about what Pathfinders works on, how we are run and how we spend our money. The staff team then works hard to realise the trustees’ vision. Trustees also work hard to raise money and support the charity in its activities.
We are currently looking for people living with muscle-weakening conditions to join the trustee board. Our co-chair of trustees Sarah Rose shares her experience of being a trustee below. Please get in touch if you would like more information.