Pathfinders Information Day – 12 May 2026
Register now for our free Information Day We are pleased to announce that Pathfinders will be hosting an Information Day at the Neuromuscular Centre in Winsford on Tuesday 12 May…
Forced into a Care Home: This Could Have Been Me
BY SARAH ROSE, Chair of Trustees of Pathfinders Neuromuscular Alliance When I read about Lucinda Ritchie, a 33-year-old disabled woman moved to a nursing home against her will, I felt…
Research Unravelled by Pathfinders Series #1:
Reviewing social care for adults with neuromuscular conditions. Overview: When it comes to support, it’s medical needs first, then social care afterwards. At least, that’s the message often received by…
Research Round Up Vol. 1: Jan-Mar 2026
If you are interested in being involved, want to work with the Research Team, or have recommendations for research funding for Pathfinders Neuromuscular Alliance, please email info@pathfindersalliance.org.uk or Suzanne@pathfindersalliance.org.uk. You…
Bone Health Guidance Video Launch
Duchenne and Bone Health: updated guidanceBone health is often overlooked in adults living with Duchenne muscular dystrophy –but it’s essential. To help explain its importance, we’re sharing some guidance in…
Bone Health and Management Guidance Update
Dr Jarod Wong from the University of Glasgow together with a group of clinical experts from the UK, with support from Action Duchenne and Muscular Dystrophy UK developed the UK…