Pathfinders expresses concern over Terminally Ill Adults (End of Life) Bill
Pathfinders Neuromuscular Alliance strongly urges MPs to vote against the Second Reading of the *Terminally Ill Adults (End of Life) Bill* and oppose this bill outright. We represent a community…
If Ibelin had met Masaraeth
Our CEO Jon, a fellow WoW gamer with Duchenne shares his own story after watching The Remarkable Life of Ibelin on Netflix. “We weren’t as rare as you think. WoW…
Major concerns over the future of adult neuromuscular care in Northern Ireland
We have joined forces with Muscular Dystrophy UK and Spinal Muscular Atrophy UK (SMA UK) to raise concerns of people living with muscle wasting and weakening conditions as a result…