Latest Articles
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Pathfinders Information Day – 12 May 2026
Register now for our free Information Day We are pleased to announce that Pathfinders will be hosting an Information Day at the Neuromuscular Centre in Winsford on Tuesday 12 May 2026 from 10am to 4pm.…
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Research Unravelled: What is test-retest reliability, and why does it matter?
Maintaining a good life balance is a huge task. The demands of daily life from family, to career ambitions, to carving out your own leisure time, are made even more complicated when you have a…
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Research Unravelled: Sleep disorders in neuromuscular diseases
We can never have enough sleep! Although some of us might burn the midnight oil because of the demands of daily life, sleep isn’t just for helping us feel rested: it actually repairs our bodies.…
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Forced into a Care Home: This Could Have Been Me
BY SARAH ROSE, Chair of Trustees of Pathfinders Neuromuscular Alliance When I read about Lucinda Ritchie, a 33-year-old disabled woman moved to a nursing home against her will, I felt something deeper than concern. I…
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Research Unravelled by Pathfinders Series #1:
Reviewing social care for adults with neuromuscular conditions. Overview: When it comes to support, it’s medical needs first, then social care afterwards. At least, that’s the message often received by those who attempt to interact…
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Research Round Up Vol. 1: Jan-Mar 2026
If you are interested in being involved, want to work with the Research Team, or have recommendations for research funding for Pathfinders Neuromuscular Alliance, please email info@pathfindersalliance.org.uk or Suzanne@pathfindersalliance.org.uk. You can follow the link below…