Mission Statement

Pathfinders Neuromuscular Alliance is a user-led charity (reg no.1155884) which promotes choice, control and quality of life for teenagers and adults with neuromuscular conditions in the UK. It campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with neuromuscular disorders (NMD) on issues such as independent living, housing, employment and welfare rights.

Aims and Objectives

To provide a voice for adults with neuromuscular conditions.

To provide a forum for adults with neuromuscular conditions to share experiences, ideas and opinions in complete confidence.

To provide information, advice and peer support to adults with neuromuscular conditions.

To identify, promote, and develop best practice, innovative treatments and technologies for adults with neuromuscular conditions.

To campaign and influence treatments for adults with neuromuscular conditions with health and local authorities, government, relevant professionals, disability organisations and charities.

To work with health and local authorities, government, disability organisations and charities to improve care, support and services for adults with neuromuscular conditions.

To increase awareness of adults with neuromuscular conditions.