Completed projects and their impact
In 2021, Pathfinders established a group of researchers committed to researching issues that affect people with muscle weakening conditions. The team is led by Dr Suzanne Glover, who has Spinal Muscular Atrophy (Type II). Our diverse team of researchers includes university academics, students, and individuals both with and without a lived experience of disability who have an interest in muscle weakening conditions.
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Community Stories and Impact
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Research Unravelled – Chronic Pain in Neuromuscular Disease
People with neuromuscular conditions are no strangers to pain. Chronic pain is pain that lasts for more than three months in any part of the body, and is tied to…
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Research Unravelled: The Psychological Burden of Neuromuscular Diseases
Having a neuromuscular condition presents a lot of challenges: that goes without saying. But for all of the interventions, treatments and clinical concerns, one of the difficulties which often goes…
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Bone Health Guidance Video Launch
Duchenne and Bone Health: updated guidanceBone health is often overlooked in adults living with Duchenne muscular dystrophy –but it’s essential. To help explain its importance, we’re sharing some guidance in…
Research
Pathfinders is actively engaged in research, including carrying out our own work exploring transition to adulthood with Duchenne Muscular Dystrophy, but also taking part in consultancy with pharmaceutical companies looking to develop treatments for muscle-weakening conditions. We also work on academic research where we can see a benefit for our members.