Summary
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Social Care Campaign: Pathfinders Blog Post
The Social Care Campaign. Why now? To illustrate why we have launched our social care campaign, we asked various members of our community to share their experiences of social care. First, Sam, our Research and…
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Self-Reliant Independency with DMD in Japan
When it comes to discussing muscle-weakening conditions, it’s easy to only think about local impact, such as accommodations available in your town, city, or country. But individuals with muscle-weakening conditions exist all across the world,…
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My Life with Ventilation: A Cripping Breath and Pathfinders Event
In popular culture, ventilation—or having air provided to your lungs with support from a machine—gets a bad rap. In movies and TV shows ventilation is often shown as a last-resort option for those who are…
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Employment in Patients with Neuromuscular Conditions
Jobs. Employment. Making a living. These are all phrases which (quite rightly) make most people break out into a sweat. The act of searching, applying, and interviewing for a job can be an exhausting, confusing…
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Perspectives of Young People with Neuromuscular Conditions on Education
Complications of Having a Neuromuscular Condition Having a neuromuscular condition can complicate many aspects of life, including education and career prospects. Between keeping up with schoolwork, missing time in the classroom due to illness and…
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The work of disabled identities in intimate relationships: Disability & Society: Vol 29, No 1
The Struggles of Intimacy and Disability (This article discusses some mature themes. Counselling services are available for anyone affected by the issues in this piece.) Intimate relationships are tough for anyone to discuss. But when…