Summary
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Research Unravelled – Chronic Pain in Neuromuscular Disease
People with neuromuscular conditions are no strangers to pain. Chronic pain is pain that lasts for more than three months in any part of the body, and is tied to negative symptoms such as fatigue,…
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Research Unravelled: The Psychological Burden of Neuromuscular Diseases
Having a neuromuscular condition presents a lot of challenges: that goes without saying. But for all of the interventions, treatments and clinical concerns, one of the difficulties which often goes unaddressed is mental health. When…
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Research Unravelled: Chronic pain in spinal muscular atrophy (SMA)
Would you believe that chronic pain in neuromuscular disorders is rarely talked about? This seems counterintuitive for a set of conditions which all feature pain as a symptom. However, Steiner et al. in a large…
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Research Unravelled: Sleep disorders in neuromuscular diseases
We can never have enough sleep! Although some of us might burn the midnight oil because of the demands of daily life, sleep isn’t just for helping us feel rested: it actually repairs our bodies.…
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Research Unravelled by Pathfinders Series #1:
Reviewing social care for adults with neuromuscular conditions. Overview: When it comes to support, it’s medical needs first, then social care afterwards. At least, that’s the message often received by those who attempt to interact…
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Social Care Campaign: Pathfinders Blog Post
The Social Care Campaign. Why now? To illustrate why we have launched our social care campaign, we asked various members of our community to share their experiences of social care. First, Sam, our Research and…