Summary
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My Life with Ventilation: A Cripping Breath and Pathfinders Event
In popular culture, ventilation—or having air provided to your lungs with support from a machine—gets a bad rap. In movies and TV shows ventilation is often shown as a last-resort option for those who are…
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Employment in Patients with Neuromuscular Conditions
Jobs. Employment. Making a living. These are all phrases which (quite rightly) make most people break out into a sweat. The act of searching, applying, and interviewing for a job can be an exhausting, confusing…
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Perspectives of Young People with Neuromuscular Conditions on Education
Complications of Having a Neuromuscular Condition Having a neuromuscular condition can complicate many aspects of life, including education and career prospects. Between keeping up with schoolwork, missing time in the classroom due to illness and…
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The work of disabled identities in intimate relationships: Disability & Society: Vol 29, No 1
The Struggles of Intimacy and Disability (This article discusses some mature themes. Counselling services are available for anyone affected by the issues in this piece.) Intimate relationships are tough for anyone to discuss. But when…
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Research Summary: Mental Health in Duchenne
BY QUINN CLARK Sometimes it feels like your physical disability rules your life. It becomes the subject of so many conversations and appointments, you might forget to take care of yourself in other ways. But…
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Pathfinders Research Wrapped: Pee Math & Disabled Researchers
BY QUINN CLARK Hello folks! Welcome to Pathfinders Research Wrapped: where our Research Team picks their favourite muscle-weakening condition-based research done this year and delivers it to you, broken down simply! I’m Quinn Clark, the…