Pathfinders Neuromuscular Alliance is delighted to announce that we have received funding from Skills for Care to design and deliver a groundbreaking training programme for the Personal Assistants & Carers (PAs) of people with neuromuscular conditions. We are proud to be able to deliver this resource to Individuals and organisations in the neuromuscular community and look forward to working with the community in the design, development and delivery of the Neuromuscular Alliance Personal Assistance (NMA PA) Training Programme.
There is a clear need for training for PAs that comes from an independent living perspective, is grounded both in individual experience and expert evidence. This training will include a description of the role of a PA, information on the medical aspects of neuromuscular conditions and the common symptoms, experiences, equipment, and support requirements shared by many people with neuromuscular conditions.
The NMA PA Training has 13 modules in three units covering:
1. Introduction to neuromuscular conditions & the role of a PA
1.1 General neuromuscular conditions – an introduction to neuromuscular conditions
1.2 Independence and the social model of disability
1.3 Neuromuscular conditions and common emergencies
1.4 Common equipment used by people with neuromuscular conditions
2. Common aspects of neuromuscular conditions
2.2 Posture, skin, and positioning
2.3 Swallowing and nutrition
2.4 Physiotherapy and exercise
3. Being an effective PA
3.1 Working in someone’s home and workplace
3.2 Supporting disabled people as parents
3.3 Respect, intimacy and personal care
3.4 Supporting people with sex and relationships
3.5 Supporting people with their emotional health
This training will be developed by Pathfinders Neuromuscular Alliance and will be offered through individual video modules with quizzes to test understanding.
The training will be designed and run by people with a neuromuscular condition. It will be project-managed by Julian Fiorentini and an advisory board will work with Julian, and a freelance presenter, to design and script each module before they are recorded.
Each session will also feature a topic expert and people with neuromuscular conditions to share their lived experiences.
The individual modules will be made available online for people with neuromuscular conditions to use in their training and recruitment of PAs, the training will also be delivered as part of a three day online conference hosted by Pathfinders Neuromuscular Alliance to take place in the first quarter of 2022.