Friday, 24 October 2025 10:30am to 4:30pm
Venue: Sync Living, Block 5, Jennymount Business Park, N Derby St, Belfast, BT15 3HN
In partnership with Muscular Dystrophy UK (MDUK) and Spinal Muscular Atrophy UK (SMAUK)
Signup link: https://www.musculardystrophyuk.org/support/events/northern-ireland-peer-support-and-information-day/
Transition to Independence – Peer Support and Information Day.
Pathfinders Neuromuscular Alliance is delighted to be working in partnership with Muscular Dystrophy UK (MDUK) and Spinal Muscular Atrophy UK (SMA UK) to bring our community together for a free special event in Northern Ireland on Friday 23rd October 2025.
A Day Focused on Independence
This relaxed and welcoming day is all about your journey to independence. We know that becoming an adult or facing changes in your condition can feel overwhelming, with big questions about care, education, employment, leisure, and living life on your own terms.
Our goal is to give you practical tools, fresh ideas, and the chance to connect with others who truly understand your experiences.
Throughout the day, you’ll hear from inspiring speakers and meet exhibitors who will share advice on topics such as:
- Social and leisure activities in Northern Ireland
- Managing your care using Direct Payments/SDS
- Employing and managing Personal Assistants
- Using adaptive technology and home adaptations
- Exploring higher education and accessible learning
- Driving and transport options
There will be plenty of time to network, ask questions, and chat. A light lunch will be provided, and a Changing Places toilet will be available. Please let us know of any dietary or accessibility requirements when registering.
Exhibitors
We’re proud to welcome a host of organisations who will be on hand throughout the day:
- Pathfinders Neuromuscular Alliance (Jah Rahman)
- SMA UK
- MDUK (Graham Hawthorne)
- Centre of Independent Living (Direct Payments/SDS/employment of PAs)
- Mark Bates Ltd (Home Employment Insurance)
- Ulster University – Christina McWilliams (AccessAbility Adviser)
- Mae Murray Foundation – Kyleigh Lough or Claire Thompson
- Queen’s University – Will Plunkett (Accessible Learning Support)
- Disability Sport NI – Ryan McQuillan and/or Terry Conroy
- Adult Neuromuscular Physio
- Motability Operations (Virtual or in person – TBC)
Provisional Agenda
10:30 – 11:30 – Registration
Refreshments, registration, and the chance to meet exhibitors.
11:30 – 12:00 – Welcome & Opening
Introductions from Pathfinders, MDUK, and SMA UK. Overview of organisations and how we can support you.
12:30 – 13:00 – Advocacy Workshop
Led by Pathfinders’ Advocacy and Campaigns Officer, focusing on self-advocacy, confidence, and navigating independence.
13:00 – 13:30 – Leisure and Social Opportunities
Presented by Mae Murray Foundation.
13:30 – 14:30 – Lunch
14:30 – 15:00 – Independent Living & Managing Care Teams
Centre of Independent Living and Mark Bates Ltd on Direct Payments/SDS, payroll, and managing carers.
15:00 – 15:30 – Lived Experiences
Stephen Myall and Catherine Taggart share personal stories of independent living.
15:30 – 15:45 – Break
15:45 – 16:15 – Technology and Independence
With Sync Living and Ideal Technology, covering home adaptations and environmental controls.
16:15 – 16:30 – Closing Remarks
Please note: the agenda is subject to change as speakers and sessions are confirmed.
Join Us
This is a unique opportunity to connect, learn, and share in a supportive environment. Whether you’re exploring higher education, looking for social opportunities, or learning how to manage your care, there’s something here for everyone.
Pathfinders will be present throughout the day—so please stop by our stand and say hello.
Spaces are limited so register now to secure your spot and be part of this important day. If the event reaches capacity, we’ll operate a waiting list to ensure everyone has a chance to attend.
Let’s come together to share, connect, and empower.