Upcoming Events

Encouraging Independence is an event for parents of children and young adults with Duchenne Muscular Dystrophy.

Hosted by Pathfinders Neuromuscular Alliance, a user led organisation, you will hear real life experiences from adults with DMD who are living independently.

We’ll also be joined by parents who have supported or are currently supporting their young adult to transition into an independent life.

The event will kick off with an introduction from Dr Jon Rey-Hastie, who himself has DMD. Next we will hear from Dr Janet Hoskin about what was learned in Action Duchenne’s Takin’ Charge project.

We’ll have a selection of live and pre recorded interviews from both adults with DMD and parents:

  • Sam Cornelius-Light & Benjamin James talk Uni life
  • Stevie and Faye Pearson share their experiences of parenthood
  • Mark Chapman (honorary president of Pathfinders) shares 50 years of doing it his way!
  • Ryan & Karen (Ryan’s mum) O’Leary share their experiences of how a residential college gave them the skills needed to live independently.
  • Lee & Kathryn (Lee’s mam) Armstrong discuss encouraging independence, driving, employment and moving out.
  • Alan Pockley tells us how another hospice user’s independent living encouraged him to move into his own bungalow.
  • Matt O’Sullivan touches on married life

The event will finish with a panel of guests taking questions.

  • Vici and Zak Richardson
  • Celine Barry
  • Jonny Howsley
  • Penny Southall

Creative & Social Sessions

Pathfinders Neuromuscular Alliance welcomes you to the first ever #PathfindersMayWeekender! 3 days of online creative and social workshops. Hosts include the Pathfinders crew and some of our mates from the neuromuscular community. Friday 21st-Sunday 23rd May live on Zoom!

What will you attend? Here’s the sched:

Friday 21st

▲ 1000 Brekky Club

▲ 1300 Cake Cake Cake

▲ 1600 What the Cook

Saturday 22nd

◼︎ 10:00 Sportibility

◼︎ 1300 Campaign Crew

◼︎ 1600 Game On

◼︎ 1900 Booze Up!

Sunday 23rd

● 1000 Spa Switch Off

● 1300 Creative Breakout

● 1600 High Tea

More info on each session coming soon.

Creative & Social Sessions

Pathfinders Neuromuscular Alliance welcomes you to the first ever #PathfindersMayWeekender! 3 days of online creative and social workshops. Hosts include the Pathfinders crew and some of our mates from the neuromuscular community. Friday 21st-Sunday 23rd May live on Zoom!

What will you attend? Here’s the sched:

Friday 21st

▲ 1000 Brekky Club

▲ 1300 Cake Cake Cake

▲ 1600 What the Cook

Saturday 22nd

◼︎ 10:00 Sportibility

◼︎ 1300 Campaign Crew

◼︎ 1600 Game On

◼︎ 1900 Booze Up!

Sunday 23rd

● 1000 Spa Switch Off

● 1300 Creative Breakout

● 1600 High Tea

More info on each session coming soon.

Creative & Social Sessions

Pathfinders Neuromuscular Alliance welcomes you to the first ever #PathfindersMayWeekender! 3 days of online creative and social workshops. Hosts include the Pathfinders crew and some of our mates from the neuromuscular community. Friday 21st-Sunday 23rd May live on Zoom!

What will you attend? Here’s the sched:

Friday 21st

▲ 1000 Brekky Club

▲ 1300 Cake Cake Cake

▲ 1600 What the Cook

Saturday 22nd

◼︎ 10:00 Sportibility

◼︎ 1300 Campaign Crew

◼︎ 1600 Game On

◼︎ 1900 Booze Up!

Sunday 23rd

● 1000 Spa Switch Off

● 1300 Creative Breakout

● 1600 High Tea

More info on each session coming soon.

Creative & Social Sessions

Pathfinders Neuromuscular Alliance welcomes you to the first ever #PathfindersMayWeekender! 3 days of online creative and social workshops. Hosts include the Pathfinders crew and some of our mates from the neuromuscular community. Friday 21st-Sunday 23rd May live on Zoom!

What will you attend? Here’s the sched:

Friday 21st

▲ 1000 Brekky Club

▲ 1300 Cake Cake Cake

▲ 1600 What the Cook

Saturday 22nd

◼︎ 10:00 Sportibility

◼︎ 1300 Campaign Crew

◼︎ 1600 Game On

◼︎ 1900 Booze Up!

Sunday 23rd

● 1000 Spa Switch Off

● 1300 Creative Breakout

● 1600 High Tea

More info on each session coming soon.

For more information about any of the events head to our facebook page or contact us via the website.

Catch up and a Cuppa


Mondays at 1pm on Zoom

Do you miss visitors or popping in to see friends? Pop the kettle on and log on to our virtual coffee morning. It’s not a quiz, webinar or an online course – just time for a chat about anything and everything. We’ll be around every Monday for you to drop in – cake is optional!

Let’s Get Quizical – Pathfinders Publess Quiz

Wednesdays at 6.15pm on Zoom

Our weekly quiz with multiple choice answers to be played on a tablet, phone or laptop/PC. Using the myquiz site – you just need the link. For those that want to we will be running a zoom meeting alongside the quiz which we will start at 6.15pm.