This privacy policy sets out how Pathfinders Neuromuscular Alliance uses and protects any information that you give us when you use our services.

Pathfinders Neuromuscular Alliance is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified, then you can be assured that it will only be used in accordance with this privacy statement.

Pathfinders Neuromuscular Alliance may change this policy from time to time by updating this page. You should check this page from time to time to ensure that you are happy with any changes. This policy is effective from 21/06/20.

What we collect and why

We may collect the following information:

Security of your data

We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online.

Email addresses will be stored on Mailchimp servers until an individual requests their data be removed.  Pathfinders Neuromuscular Alliance has a data processing agreement with Mailchimp which complies with UK/EU data protection legislation.  Mailchimp has put in place suitable physical, electronic and managerial procedures to safeguard and secure the information it holds.

As part of the G Suite, Google forms provides a high level of data encryption and its securoity measures comply with ISO 27001 standards on security.

Pathfinders Neuromuscular Alliance has a data processing agreement with Google which ensures compliance with data protection legislation.  Google agrees not to use or share any data we store on Google Drive.

In addition to this privacy policy, Pathfinders Neuromuscular Alliance has a comprehensive Data Protection Policy which sets out key principles and safeguards for maintaining data protection in line with the data protection act.

How we use cookies

A cookie is a small file which asks permission to be placed on your computer’s hard drive. Once you agree, the file is added and the cookie helps analyse web traffic or lets you know when you visit a particular site. Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences.

We use traffic log cookies to identify which pages are being used. This helps us analyse data about web page traffic and improve our website in order to tailor it to customer needs. We only use this information for statistical analysis purposes and then the data is removed from the system.

Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.

You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. This may prevent you from taking full advantage of the website.

Links to other websites

Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.

Controlling your personal information

You may choose to restrict the collection or use of your personal information in the following ways:

We will not sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so. We may use your personal information to send you promotional information about third parties (e.g. pharmaceutical companies, equipment companies, etc.) which we think you may find interesting if you tell us that you wish this to happen.

You may request details of personal information which we hold about you under the Data Protection Act 1998. A small fee may be payable. If you would like a copy of the information held on you please contact us at

If you believe that any information we are holding on you is incorrect or incomplete, please write to or email us as soon as possible, at the above address. We will promptly correct any information found to be incorrect.

Where you can get more information

You can access information about your rights to data on the information Commissioner’s office website here:

Please contact us for any additional information or if you would like to see our data protection policy and relevant data processing agreements.