Nippy 4+ ventilator

Advice

  • Ventilation and Powercuts

    Ventilation and Powercuts

    We are currently updating our resources, but you can download our guide on managing power interruptions when on ventilation here:

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  • Private Renting

    Private Renting

    Private renting involves paying a private landlord money – typically every month – to live in a property they own. To find privately rented properties you can look on estate agent’s and property websites and…

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  • DMD Cardiac Care

    DMD Cardiac Care

    For people with DMD, having good cardiac care is crucial. Heart problems are common, but by looking after yourself, staying on top of your medical treatment, and seeking advice where need, you can help your…

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  • Disabled Facilities Grant

    Disabled Facilities Grant

    As a disabled person you are entitled to a Disabled Facilities Grant (DFG) from the government if you need to make adaptations to your property.

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  • Shared Ownership

    Shared Ownership

    Shared Ownership is a stepping stone for those looking to buy their own home but can’t quite afford to buy on the open market

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  • Getting a Mortgage with a Muscle-Weakening Condition

    Getting a Mortgage with a Muscle-Weakening Condition

    It is completely possible to get a mortgage if you have a neuromuscular condition and on benefits. Under the Equality Act 2010, Mortgage lenders are prohibited from discriminating against you because of any physical or…

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Personal Experiences

One of the strengths of Pathfinders is the wide range of experiences our members have had – and we collect those here for you to find out more about daily life with a muscle-weakening condition.