We are currently updating our resources, but you can download our guide on managing power interruptions when on ventilation here:
Private renting involves paying a private landlord money – typically every month – to live in a property they own. To find privately rented properties you can look on estate agent’s and property websites and…
For people with DMD, having good cardiac care is crucial. Heart problems are common, but by looking after yourself, staying on top of your medical treatment, and seeking advice where need, you can help your…
As a disabled person you are entitled to a Disabled Facilities Grant (DFG) from the government if you need to make adaptations to your property.
One of the strengths of Pathfinders is the wide range of experiences our members have had – and we collect those here for you to find out more about daily life with a muscle-weakening condition.