The team at Pathfinders is made up of, and led by, people from the communities we represent, including our trustees. There are lots of opportunities to become a part of the team at Pathfinders, including jobs, freelance opportunities, and volunteering.
We are currently recruiting for trustees – if you are interested in applying, please contact Sarah, our Chairs of Trustees or use our contact form.
Sarah Rose – Chair
Sarah Rose is a co-Chair of Trustees. She lives in East Sussex in her own home with support from a team of PAs. She completed a degree in English Language and Linguistics, and then a Masters in Education. After these achievements, she worked in a school as a Language Support Assistant for 7 years. Sarah is currently a forum moderator for another MD charity and does research and campaign work for an advice organisation. In her free-time Sarah also likes writing, making cards and doing crosswords.
Vicky Mozley
Vicky, 46, has been a Trustee for Pathfinders Neuromuscular Alliance since 2021. She also works as a Community Peer Researcher, using her lived experience to help shape projects that support and empower others in the neuromuscular community.
Born with the rare neuromuscular disorder Congenital Myopathy, which affects her muscles and breathing, Vicky has used a wheelchair and ventilator since her early teens.
Based in East Sussex, she enjoys going to the theatre, listening to audiobooks, watching films, and discovering new foods and cocktails — a true foodie at heart!
Daniel Baker
Daniel has been a member of a few charities over the years and helped out in various ways. He has also been a trustee of two charities, DROP, a local charity focused on both physical and mental health conditions. He was trustee, and co-chair of DMD Pathfinders, for several years, but after the charity had expanded and become Pathfinders Neuromuscular Alliance he stood down and took a break for a while to recharge. Daniel has always been passionate about speaking up for others with disabilities and showing that we can live fulfilling lives, being interviewed various times over the years or writing articles and even appeared briefly in the BBC/Netflix drama Requiem.
Daniel says: “I am now happy to have returned to Pathfinders Neuromuscular Alliance as a trustee and am looking forward to helping shape the future of the charity”.
Andrew Tunks
Andrew was invited by the CEO and the Board of Trustees on financial issues in 2022 on a voluntary basis. In October 2024 Andrew was asked to join the Board of Trustees, which he was happy to accept.
Andrew is a trustee for 4 other charities and in addition sits on Advisory committees covering Finance, Investment, Risk and Audit for 3 other organisations.
Andrew has felt rewarded working with fellow Trustees and Pathfinder’s management team, and has greatly enjoyed moving Pathfinders forwards.
Phillipa Groves
Phillipa lives in Eastbourne and recently remarried. Her son Dan had DMD, and he was a great character and a terrible flirt. Phillipa was involved with the Duchenne Family Support Group for many years because of this and did plenty of advocacy and campaigning for DMD and neuromuscular conditions. She served 2 terms as a trustee at MDUK and was also a trustee at Genetic Alliance supporting families with all types of rare disease.
Phillipa has been aware of Pathfinders since its inception and has seen it grow and become an amazing charity, doing so many wonderful things and has found it inspiring to have a charity that is user led. Phillipa is proud to be an advisor to the board and hopes some of her experience over the years will help to make the charity flourish even more.
Jobs and Volunteering
Pathfinders prioritises recruiting people with muscle-weakening conditions, so if you’re looking for work, keep a close eye on our website, and see if anything comes up. As well as regular employment, there are also often freelance roles available.
We also have a range of voluntary opportunities, from consultancy for organisations to social media and outreach, media ambassadors to authors and researchers.