A group shot from the UpLift weekender 2023.


Pathfinders is here to support people with muscle-weakening conditions. As well as advocacy support, we offer a wide range of advice resources, personal experiences, training for personal assistants/carers and for the people that employ them, and research reports.

Advocacy & Support

Advocacy and Support

We provide advocacy for adults with neuromuscular conditions, working with them to access the services they need to live independent, fulfilling lives, from health and social care, to work and education. If you’re facing difficulties getting access to the services and resources you need, you can contact the Pathfinders advocacy service for support.

Developed by people with muscle-weakening conditions, our free, independent and confidential advocacy service is here to support you in having your voice heard and to give you control over your own lives.

If you are not getting the care and support you need or you don’t agree with decisions that have been made about your life, our advocacy service can support you in challenging these decisions.

As well as providing 1:1 Advocacy Support from someone with lived experience, the other main aims of this service is to support our members in developing their self-advocacy skills and to provide a service that is person-centered.