Blogs from adults with neuromuscular conditions
AdventureWheels
Karla Baker, who has Spinal Muscular Atrophy type 2, travels around the UK and Europe in a custom-adapted caravan with her partner, Stephen. Adventure Wheels began as a virtual journal to document their trips, but has quickly grown from there. They are both passionate about people of all abilities being able to travel and experience the great outdoors, and strive to bring you useful information on accessible van-life, places to stay, things to do, walking (rolling) routes, as well as sharing their travel stories to inspire your own adventures.
Simply Emma – UK Based Travel & Disabled Blogger
I’m Emma and I’m the founder and writer of Simply Emma. I live with my partner, Allan, and our two tuxedo kittens, Arlo and Willow, in a small town in Scotland. When not travelling or writing about our travels, you’ll find me planning our next adventure, rolling around enjoying the great outdoors at home and creating memories with our nephew. I also have a muscle wasting condition called Limb Girdle Muscular Dystrophy, which means my wheels are my legs, but that certainly hasn’t stopped me from travelling and living life the way I want to. Simply Emma is a way of sharing my experiences living with a physical disability – simply me – simply my life.
Kerry Thompson – My Life, Kerry’s Way
Hi I’m Kerry, a disability blogger and advocate with a rare form of Muscular Dystrophy. You might recognise me for being a trustee or for my extensive campaigning on Changing Places toilets or for better accessible housing. I’m been extremely lucky to be named an ambassador for Purple Tuesday improving the customer experience for disabled people. Two years running I’ve been named on the Shaw Trust power 100 list as one of the most influential disabled people in the UK. I believe everyone has the right to live in a world that is inclusive to all. I don’t want someone fighting for the same things I am in 10 years time!
Life of an Ambitious Turtle
My name is Fi Anderson, and I am a 32 year old stay-at-home Mum of 2 precious little girls living in Bolton, Greater Manchester UK, living with a progressive life-limiting muscle wasting condition. I’ve been an active campaigner and disability activist from a young age. Working prominently as a Trailblazer and as of early 2017 – Transport Ambassador with Muscular Dystrophy UK. Participating in high profile awareness campaigns such as the #FitToBurst Changing Places Campaign – trying to implement the need for fully accessible toilets across the UK, the End of the Line report on better improving public transport and the Locked-Out campaign looking into the lack of accessible housing.
Dynamic
Samuel is a young male with Duchenne Muscular Dystrophy in his early 20s currently working within Cyber Security. He has a Bachelor’s degree with Honours in Computer Systems (Forensics and Security). In his spare time, he runs a blog at dynamicdouble.co.uk, streams on Twitch at twitch.tv/dynamic_double, attends professional events and gets involved in various voluntary projects. He also enjoys listening to Metalcore, Rock, watching anime and playing games on PC.
A Life on Wheels
Ross Lannon – who has Spinal Muscular Atrophy (SMA Type 2) – is a lifestyle & disability blogger from Cornwall. Often described as a ‘cheeky chappy’, he uses his platform to share comical lifestyle stories, as well as reviewing accessible events, activities and products. With a passion to work within the media, Ross has used his blog in the past to document his various TV, magazine and radio appearances. Whilst promoting independence, Ross lives on his own with support from a team of carers, alongside his furry friend Ralph. As well as campaigning for more positive representations of disabilities, Ross also drives an adapted vehicle from his wheelchair. ‘A Life on Wheels’ follows his journey through adulthood, as a young man with a physical disability.