Strategic Plan: Pathfinders 2022-23

Every year, Pathfinders Neuromuscular Alliance creates a plan for the work we’re doing over the upcoming year. The Strategic Plan helps us focus on our main priorities for the next year. If you want to read the full document, you can download the full .pdf document here (link). Otherwise, read on to find out more […]

UpLift Project Officially Launches!

You may have noticed over the past few months, Pathfinders has been talking more about young people. That is because we have been working away in the background on our exciting new project called UpLift! We were awarded funding by The National Lottery Community Fund to deliver a project focused on the young people in […]

A new chapter for Pathfinders as I step down

BY JON REY-HASTIE The time has come for a change! I have decided to move on from my CEO role at Pathfinders after 5 ½ years, in order to pursue new challenges and opportunities. It is with great pride that I look upon Pathfinders now and how far we have come from our humble beginnings. […]

Pathfinders Research Team Update

What have we been doing? It’s been a while since you’ve heard from the Pathfinders Research Team, but rest assured, we’ve been busy! On behalf of the Pathfinders Research Team, here’s an update from the Pathfinders Research Officer, Dr Suzanne Glover, and peer researchers Luca Buccella, Ryan Dack, Panos Nezos and Jüri Lehtmets. In April […]

Our April Monthly Honours goes to Tanvi Vyas!

It’s that time again, when the Pathfinders Neuromuscular Alliance Monthly Honours award goes out to someone in the community. This person deserves recognition for not only the work they have done, but the projects they have still to come. When I saw this month’s award, I couldn’t think of another person more deserving. This time […]

Rare Disease Day 2022

On the 28th of February 2022, Pathfinders will be celebrating Rare Disease Day! Rare Disease Day is a global movement that works towards equity for people living with a rare disease. Since its creation in 2008, it has played an important part in building a diverse international community that is global, diverse and united. Rare […]

You Can Care Week

From the 21st to the 28th of February, Pathfinders is celebrating ‘You Can Care Week’! The awareness week aims to highlight the brilliant people working in the care sector and to encourage more people to join.  This is especially important in 2022, as we recover from the pandemic and start to get back on the […]

Welcome to the Pathfinders team Jacqui!

We want to welcome Jacqui to the Pathfinders team. She’ll be joining us as the new Project and Campaigns Assistant working with Cath and Michaela. With a background in creative arts, Jacqui is passionate about disability equality, exploring different forms of art and has worked in the industry for over 15 years. Here’s what she […]

Fleur Perry is our January monthly honours!

A green background. On the left is a polaroid-style image of Fleur Perry, a white woman in a black electric wheelchair, with light coloured hair, glasses, and a t-shirt with five coloured zigzag vertical stripes. On the right of the image it says "Pathfinders Neuromuscular Alliance Monthly Honours award for January 2022 is awarded to Fleur Perry

This month, our Honours go to the absolutely fantastic Fleur Perry!  As Fleur joins me for our Zoom Interview, I notice a change. Not in Fleur ; she’s the same, smiling, happy go lucky, relentless woman I’ve known for some years now. It’s me that’s changed. I’m completely put at ease by her, hanging on […]