Nippy 4+ ventilator

Advice: Health

  • Ventilation and Powercuts

    Ventilation and Powercuts

    We are currently updating our resources, but you can download our guide on managing power interruptions when on ventilation here:

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  • DMD Cardiac Care

    DMD Cardiac Care

    For people with DMD, having good cardiac care is crucial. Heart problems are common, but by looking after yourself, staying on top of your medical treatment, and seeking advice where need, you can help your…

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  • COVID-19 Statement and FAQ

    COVID-19 Statement and FAQ

    There has been considerable anxiety amongst people with neuromuscular conditions about the risks of COVID-19. While there have been anecdotal reports of people developing COVID-19 and recovering, any source of respiratory infection is very concerning…

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  • Living With a Feeding Tube

    Living With a Feeding Tube

    What is a feeding tube? A feeding tube delivers a nutrient feed directly into the stomach or intestine. This allows an adult with a muscle-weakening condition to meet their nutritional needs without chewing or swallowing…

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  • The Nutrition Timeline for People with DMD

    The Nutrition Timeline for People with DMD

    As Duchenne progresses, nutritional issues also change. It’s important to ensure that people’s nutritional needs are met, whilst recognising that being overweight and being underweight carry health issues for people with DMD Childhood During childhood,…

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  • How to Eat a Healthy Diet

    How to Eat a Healthy Diet

    In general, adults with neuromuscular disorders should strive to have a healthy diet balanced in energy, protein, fluid, calcium, vitamin D, and other nutrients. Adults should aim to include a variety of foods from the…

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