SMA & Me – John’s Story
For Spinal Muscular Atrophy (SMA) awareness month we asked some of our members about living with their condition – John tells us about his passion for arts, acting, reading, the challenges he has faced throughout education, the positive impact of technology and more! My name is John P Vickers, and I am 42 and I […]
SMA & Me – Ross’ Story
For Spinal Muscular Atrophy (SMA) awareness month we asked some of our members about living with their condition – Ross tells us about learning to drive, his education, opportunities and the challenges he has faced along the way! I’m Ross. I’m 42 and have SMA Type II. Throughout life I’ve faced many challenges because of […]
SMA & Me – Nina’s Story
For Spinal Muscular Atrophy (SMA) awareness month we asked some of our members about living with their condition – Nina tells us about her moving to America with her husband, daughter and cat and groups she’s been part of, such as the Teesside Muscular Dystrophy Group! I’m 37 year old, born and raised in Middlesbrough […]
SMA & Me – Matthew’s Story
For Spinal Muscular Atrophy (SMA) awareness month we asked some of our members about living with their condition – here Matthew tells us about his love for Powerchair Football and sports, as well as his academic successes! My name is Matthew Hadfield, I am an Assistant Capital Accountant and Powerchair football player from Chesterfield. For […]
The July Monthly Honours go to Robert Watson
This month we remember one of Pathfinders original trustees and founding members, Robert Watson, with a posthumous honour. Robert wanted to try and help others with Duchenne Muscular Dystrophy or similar conditions, by campaigning for change. Some of his proudest achievements were taking his campaign, “What About Us”, to the Scottish Parliament and being voted […]
‘Who Cares?’ – Sanjeev talks care agency pros & cons
My name is Sanjeev and I am a journalist, producer, and development worker for Pathfinders, with Duchenne Muscular Dystrophy. Like many with a neuromuscular condition, I rely on other people like carers, personal assistants, family, and friends to go about my regular day whether going out or staying in, as well as for personal care. […]
‘Who Cares?’ A care & support series
In the next few months development worker, Sanjeev and guests will be sharing their thoughts and opinions in a series of articles about all things care-related. The articles will cover a range of topics around care and support as well including overviews, guidelines pros and cons and guest posts. Areas include: How to get care […]
‘Who cares?’ Sanjeev talks top tips for organising care
As someone living with Duchenne Muscular Dystrophy or anyone with a muscle-weakening condition, care is vital to our day-to-day lives. From getting ready in the morning to going out with friends and going to work, you need to make sure your care is organised and correct for you! It can be difficult and tiring to […]
Alex James interview – A Year On
Development Worker Sanjeev Mann has a chat with Alex James about all things music, current releases, Duchenne Muscular Dystrophy, plans for the future as well as aims as a musician.
We chat with Gaming Accessibility Specialist Ian Hamilton
Our Development Worker Sanjeev Mann has a chat with Gaming Accessibility Specialist Ian Hamilton. He spoke about his real, the importance of software, game settings as well as what developers are doing to be more accessible.