Freelance – Tanvi’s Top 5 Tips
Going freelance just over five years ago was one of the best decisions I made. It can work really well for some people. Balancing lots of spinning plates is a challenge for most. Adding a long term neuromuscular condition into the mix can mean it’s tricky to keep a balance between work, health, relationships and […]
Powerchair Sports – My Powerchair Football Story
Liam Ashton My name is Liam Ashton and I’ve been playing powerchair football for 6 years and power hockey for 10 years at Greenbank Sports Academy in Liverpool. I have DMD, but that doesn’t stop me playing the sports I love. I was introduced to power football in 2016, when my power hockey coaches, Gerry […]
Our April Monthly Honours goes to Tanvi Vyas!
It’s that time again, when the Pathfinders Neuromuscular Alliance Monthly Honours award goes out to someone in the community. This person deserves recognition for not only the work they have done, but the projects they have still to come. When I saw this month’s award, I couldn’t think of another person more deserving. This time […]
What it’s like: to be a woman with a muscle-weakening condition
This week marked International Women’s Day 2022 (08/03/22). The purpose of InternationalWomen’s Day is to celebrate the achievements of women while crushing stereotypes andchallenging bias with an aim to achieve gender equality. The theme for this year’s InternationalWoman’s Day was ‘Break the Bias’ (#Breakthebias) – but what does that mean if you’re a woman with a […]
This month we are celebrating the campaigning and advocacy achievements of Kerry Thompson.
When I spoke to Kerry, she was just recovering from a wonderful evening in Liverpool Cathedral. She had been invited to the National Diversity Awards as a finalist for the Positive Role Model in Disability. She had been shortlisted from 52,000 to 8 and given all, she has achieved, it is clear to see why. […]
Rare Disease Day 2022
On the 28th of February 2022, Pathfinders will be celebrating Rare Disease Day! Rare Disease Day is a global movement that works towards equity for people living with a rare disease. Since its creation in 2008, it has played an important part in building a diverse international community that is global, diverse and united. Rare […]
You Can Care Week
From the 21st to the 28th of February, Pathfinders is celebrating ‘You Can Care Week’! The awareness week aims to highlight the brilliant people working in the care sector and to encourage more people to join. This is especially important in 2022, as we recover from the pandemic and start to get back on the […]
Welcome to the Pathfinders team Jacqui!
We want to welcome Jacqui to the Pathfinders team. She’ll be joining us as the new Project and Campaigns Assistant working with Cath and Michaela. With a background in creative arts, Jacqui is passionate about disability equality, exploring different forms of art and has worked in the industry for over 15 years. Here’s what she […]
Fleur Perry is our January monthly honours!
This month, our Honours go to the absolutely fantastic Fleur Perry! As Fleur joins me for our Zoom Interview, I notice a change. Not in Fleur ; she’s the same, smiling, happy go lucky, relentless woman I’ve known for some years now. It’s me that’s changed. I’m completely put at ease by her, hanging on […]
Five tips to keep your New Year’s Resolutions
It’s all well setting your New Year’s Resolutions – but how are you going to keep them? It’s not just you who struggles to keep your resolutions – most of us probably do. With 2022 round the corner, why not read our article on “Five ideas for New Year’s Resolutions”, and work out what yours […]