Our July Monthly Honours goes to Lizzie Baily

Pathfinders Monthly Honours image, titled "Monthly Honours". On the left is a polaroid style image with a picture of Lizzie Baily, a white woman with blonde hair in an electric wheelchair, with the Pathfinders logo and a yellow trophy below it. On the right it says "Pathfinders Neuromuscular Alliance Monthly Honours Award for July 2022 is awarded to Lizzie Baily". At the bottom is the Pathfinders logo

Lizzie Baily is this month’s Monthly Honours awardee. This is in recognition of her fantastic work organising and running a craft club and regular inclusive family days. About Lizzie Baily Lizzie has been a supporter and member of Pathfinders. She joined after a friend who also has Congenital MD, the same condition as her, introduced […]

Strategic Plan: Pathfinders 2022-23

Every year, Pathfinders Neuromuscular Alliance creates a plan for the work we’re doing over the upcoming year. The Strategic Plan helps us focus on our main priorities for the next year. If you want to read the full document, you can download the full .pdf document here (link). Otherwise, read on to find out more […]

Our June Monthly Honours goes to Ruth Everard

On Ruth Everard, by Sarah Rose This month, the name Ruth Everard dropped into my email inbox as the Monthly Honours Winner. At first, it really didn’t click in my brain that I’d be interviewing one of the disabled community’s genuine celebrities. However, the name stuck and after a quick bit of research, I found […]

PA Training Course

A group of people in a room

Pathfinders Neuromuscular Alliance is delighted to announce that we have received funding from Skills for Care to design and deliver a groundbreaking training programme for the Personal Assistants & Carers (PAs) of people with neuromuscular conditions. We are proud to be able to deliver this resource to Individuals and organisations in the neuromuscular community and […]

WANTED: Presenter of the Pathfinders PA Training Course

CEO, Jon Rey-Hastie presents to a room. He is in an electric wheelchair and wearing a red jumper

Are you a blogger? Do you like streaming? Is talking to camera your favourite kind of conversation? Then you’re what we’re looking for Our new training programme supports PAs to learn how to better work with their employer to support them as a person with a muscle-weakening condition. It is taught across thirteen modules, delivered […]

WANTED: Panellists for the Pathfinders PA Training Course

Mark Chapman and another electric wheelchair user in conversation

Do you have knowledge you long to share? Are you happy chatting on camera? Get in touch! Pathfinders are looking for a panel of contributors for our PA training course. Contributors will give us their thoughts and ideas on the modules we are developing and contribute to the modules through video-interviews with the presenter. This […]

Presenters & Panel – paid roles on our new PA training programme

A group of people together at a conference

Do you dream of being on screen? Are you interested in Personal Assistants? Pathfinders Neuromuscular Alliance is recruiting for a presenter and panel contributors (paid roles) with neuromuscular conditions for an online training programme we are developing for the PAs of people with neuromuscular conditions (funded by Skills for Care). If you’re confident in front […]

Pathfinders Trustee Applications

Lucy Watts with assistance dog Molly

Since we became Pathfinders Neuromuscular Alliance, we’ve thought a lot about how to ensure that our trustee board brings the skills and experience we rely on, while also representing as many of our members as possible. As a result, Pathfinders is recruiting for trustees. We already have an excellent board of trustees, but as a […]

Comedy & Cocktails – a Pathfinders Fundraiser

Pathfinders is delighted to announce a night of comedy and cocktails on Thursday 10th June – headlined by Britain’s Got Talent winner, Lost Voice Guy – the first stand-up comedian to use a communication aid. Tickets are available now Our work relies on fundraising in order to keep doing what we do – and you […]

Mark Chapman – Our New Honorary President

A photo of Mark Chapman with the Pathfinders Lifetime Achievement Award

Our co-founder Mark Chapman has retired from his role of Chair of the Board of Trustees for Pathfinders Neuromuscular Alliance, and named our first Honorary President in recognition of his service to the charity. Having been involved in Pathfinders since he co-founded it alongside CEO Jon Rey-Hastie in 2014, at the Trustee Board meeting on […]