PA Training Course

A group of people in a room

Pathfinders Neuromuscular Alliance is delighted to announce that we have received funding from Skills for Care to design and deliver a groundbreaking training programme for the Personal Assistants & Carers (PAs) of people with neuromuscular conditions. We are proud to be able to deliver this resource to Individuals and organisations in the neuromuscular community and […]

WANTED: Presenter of the Pathfinders PA Training Course

CEO, Jon Rey-Hastie presents to a room. He is in an electric wheelchair and wearing a red jumper

Are you a blogger? Do you like streaming? Is talking to camera your favourite kind of conversation? Then you’re what we’re looking for Our new training programme supports PAs to learn how to better work with their employer to support them as a person with a muscle-weakening condition. It is taught across thirteen modules, delivered […]

WANTED: Panellists for the Pathfinders PA Training Course

Mark Chapman and another electric wheelchair user in conversation

Do you have knowledge you long to share? Are you happy chatting on camera? Get in touch! Pathfinders are looking for a panel of contributors for our PA training course. Contributors will give us their thoughts and ideas on the modules we are developing and contribute to the modules through video-interviews with the presenter. This […]

Presenters & Panel – paid roles on our new PA training programme

A group of people together at a conference

Do you dream of being on screen? Are you interested in Personal Assistants? Pathfinders Neuromuscular Alliance is recruiting for a presenter and panel contributors (paid roles) with neuromuscular conditions for an online training programme we are developing for the PAs of people with neuromuscular conditions (funded by Skills for Care). If you’re confident in front […]

Pathfinders Trustee Applications

Lucy Watts with assistance dog Molly

Since we became Pathfinders Neuromuscular Alliance, we’ve thought a lot about how to ensure that our trustee board brings the skills and experience we rely on, while also representing as many of our members as possible. As a result, Pathfinders is recruiting for trustees. We already have an excellent board of trustees, but as a […]

Comedy & Cocktails – a Pathfinders Fundraiser

Pathfinders is delighted to announce a night of comedy and cocktails on Thursday 10th June – headlined by Britain’s Got Talent winner, Lost Voice Guy – the first stand-up comedian to use a communication aid. Tickets are available now Our work relies on fundraising in order to keep doing what we do – and you […]

Mark Chapman – Our New Honorary President

A photo of Mark Chapman with the Pathfinders Lifetime Achievement Award

Our co-founder Mark Chapman has retired from his role of Chair of the Board of Trustees for Pathfinders Neuromuscular Alliance, and named our first Honorary President in recognition of his service to the charity. Having been involved in Pathfinders since he co-founded it alongside CEO Jon Rey-Hastie in 2014, at the Trustee Board meeting on […]

Feeding Tube FAQ

A diagram of a PEG feeding tube

What is a feeding tube, and why might you need one? A feeding tube delivers a nutrient feed directly into the stomach, allowing an adult with a neuromuscular disorder to meet their nutritional needs without having to chew and swallow food. There are three main reasons why adults with neuromuscular disorders may require a feeding tube: […]

Duchenne Nutrition Timeline

circular green text saying Healthy Eating surrounding two apples and a banana in the shape of a smiley face

As Duchenne progresses, nutritional issues also change. During childhood, especially when steroids are used and at the time when children start using a wheelchair, there is a particular risk of obesity which can impede breathing and reduce muscle function and mobility. Dietary advice to assist with maintaining a healthy weight is required. In teenage or […]

How to Eat a Healthy Diet

text saying Healthy diet over a grid showing various cartoon styled foods

In general, adults with neuromuscular disorders should strive to have a healthy diet balanced in energy, protein, fluid, calcium, vitamin D, and other nutrients. Adults should aim to include a variety of foods from the five main food groups: fruit; vegetables; meat, poultry and alternatives; dairy and breads and cereals. MICRO-NUTRIENTSAdults are at risk of […]