Jamie Hale
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Living with Mental Health Problems – Ryan’s Story
Before we get started. I want to make it clear that things improved – I got “better”. Mental health is nothing to be ashamed of and we should normalise talking about it. Here’s my story.…
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COVID-19 Statement and FAQ
There has been considerable anxiety amongst people with neuromuscular conditions about the risks of COVID-19. While there have been anecdotal reports of people developing COVID-19 and recovering, any source of respiratory infection is very concerning…
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Transport – Introducing Your Options
Public transport Buses Buses are normally expected to be wheelchair accessible nowadays, although rail replacement buses are not. Local buses can be quite narrow, and the wheelchair space can be quite small, but it should…
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An Introduction to Social Care
Many people with muscle-weakening conditions need support with ‘activities of daily living’ – whether that means getting washed and dressed, going out, or things like physiotherapy and ventilation. For some people, this is provided by…
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Living With a Feeding Tube
What is a feeding tube? A feeding tube delivers a nutrient feed directly into the stomach or intestine. This allows an adult with a muscle-weakening condition to meet their nutritional needs without chewing or swallowing…
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The Nutrition Timeline for People with DMD
As Duchenne progresses, nutritional issues also change. It’s important to ensure that people’s nutritional needs are met, whilst recognising that being overweight and being underweight carry health issues for people with DMD Childhood During childhood,…