Jamie Hale
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How to Eat a Healthy Diet
In general, adults with neuromuscular disorders should strive to have a healthy diet balanced in energy, protein, fluid, calcium, vitamin D, and other nutrients. Adults should aim to include a variety of foods from the…
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Nutritional and Dietary Supplements
Nutraceuticals and dietary supplements are products made from natural food sources that are believed to have health benefits beyond their basic nutritional value. They can come in different forms, such as pills, fortified foods, or…
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Maintaining a Healthy Weight
Energy balance is an important concept for understanding weight management. The body uses energy all the time, even when at rest or sleep. Energy balance is when the energy obtained from diet (measured in calories)…
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Mounting Devices On Your Bed and Wheelchair
My husband made me a covered, wooden wedge, to prop up my phone on my wheelchair table for a good viewing angle, near my hands. I’ve been able to play the piano again using Garage…
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Managing Bowels and Constipation
Constipation is a common symptom for both children and adults with muscle-weakening conditions. This can be very uncomfortable and dangerous if untreated, as it can lead to bowel impaction. Although comparatively less studied than the muscles involved in chewing…
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Ventilation: Frequently Asked Questions
While we’re currently uploading all our advice resources online, take a look at our pdf guide exploring some of the frequently asked questions people have about ventilation here: