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  • Bone Health Guidance Video Launch

    Bone Health Guidance Video Launch

    Duchenne and Bone Health: updated guidanceBone health is often overlooked in adults living with Duchenne muscular dystrophy –but it’s essential. To help explain its importance, we’re sharing some guidance in theform of short, animated videos.…

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  • Bone Health and Management Guidance Update

    Bone Health and Management Guidance Update

    Dr Jarod Wong from the University of Glasgow together with a group of clinical experts from the UK, with support from Action Duchenne and Muscular Dystrophy UK developed the UK NorthStar network DMD-specific adult and…

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  • Christmas Appeal 2025

    Christmas Appeal 2025

    Small Gifts. Big Impact. Today, we are launching our Christmas Appeal with the theme of Small Gifts. Big Impact. This year we face rising costs and growing demand. Your gift whether large or small means…

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  • Social Care Campaign:           Pathfinders Blog Post

    Social Care Campaign: Pathfinders Blog Post

    The Social Care Campaign. Why now? To illustrate why we have launched our social care campaign, we asked various members of our community to share their experiences of social care. First, Sam, our Research and…

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  • Self-Reliant Independency with DMD in Japan

    When it comes to discussing muscle-weakening conditions, it’s easy to only think about local impact, such as accommodations available in your town, city, or country. But individuals with muscle-weakening conditions exist all across the world,…

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  • UpLift Action Hoists in Hotels Review

    UpLift Action Hoists in Hotels Review

    An Insight Into the Day Our UpLift Team’s ACTION event to get people involved in campaigning took place on Saturday 18th October at The University of East London’s Sustainability Research Institute. Combining workshops and presentations…

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