Featured
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Forced into a Care Home: This Could Have Been Me
BY SARAH ROSE, Chair of Trustees of Pathfinders Neuromuscular Alliance When I read about Lucinda Ritchie, a 33-year-old disabled woman moved to a nursing home against her will, I felt something deeper than concern. I…
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Research Unravelled by Pathfinders Series #1:
Reviewing social care for adults with neuromuscular conditions. Overview: When it comes to support, it’s medical needs first, then social care afterwards. At least, that’s the message often received by those who attempt to interact…
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Research Round Up Vol. 1: Jan-Mar 2026
If you are interested in being involved, want to work with the Research Team, or have recommendations for research funding for Pathfinders Neuromuscular Alliance, please email info@pathfindersalliance.org.uk or Suzanne@pathfindersalliance.org.uk. You can follow the link below…
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Bone Health Guidance Video Launch
Duchenne and Bone Health: updated guidanceBone health is often overlooked in adults living with Duchenne muscular dystrophy –but it’s essential. To help explain its importance, we’re sharing some guidance in theform of short, animated videos.…
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Bone Health and Management Guidance Update
Dr Jarod Wong from the University of Glasgow together with a group of clinical experts from the UK, with support from Action Duchenne and Muscular Dystrophy UK developed the UK NorthStar network DMD-specific adult and…
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Christmas Appeal 2025
Small Gifts. Big Impact. Today, we are launching our Christmas Appeal with the theme of Small Gifts. Big Impact. This year we face rising costs and growing demand. Your gift whether large or small means…