Featured
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Research Unravelled: The Psychological Burden of Neuromuscular Diseases
Having a neuromuscular condition presents a lot of challenges: that goes without saying. But for all of the interventions, treatments and clinical concerns, one of the difficulties which often goes unaddressed is mental health. When…
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UpLift Weekender 2026: A Weekend of Confidence, Connection and Fun!
Our fourth annual UpLift Weekender took place in Liverpool from 19th–21st June, bringing together 13 young adults with muscle-weakening conditions for a packed weekend of friendship, confidence-building and unforgettable memories. Returning to the fantastic Novotel…
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Liverpool Gears Up for UpLift’s WEEKENDER 2026
This year will see UpLift’s fourth annual WEEKENDER, which is returning to Liverpool for the second time. Every year we’re just as excited as the delegates to be going to the event, which brings together…
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Research Unravelled: Chronic pain in spinal muscular atrophy (SMA)
Would you believe that chronic pain in neuromuscular disorders is rarely talked about? This seems counterintuitive for a set of conditions which all feature pain as a symptom. However, Steiner et al. in a large…
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Pathfinders Information Day – 12 May 2026
Register now for our free Information Day We are pleased to announce that Pathfinders will be hosting an Information Day at the Neuromuscular Centre in Winsford on Tuesday 12 May 2026 from 10am to 4pm.…
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Forced into a Care Home: This Could Have Been Me
BY SARAH ROSE, Chair of Trustees of Pathfinders Neuromuscular Alliance When I read about Lucinda Ritchie, a 33-year-old disabled woman moved to a nursing home against her will, I felt something deeper than concern. I…