Featured
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Pathfinders expresses concern over Terminally Ill Adults (End of Life) Bill
Pathfinders Neuromuscular Alliance strongly urges MPs to vote against the Second Reading of the *Terminally Ill Adults (End of Life) Bill* and oppose this bill outright. We represent a community living with muscle-weakening conditions with…
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If Ibelin had met Masaraeth
Our CEO Jon, a fellow WoW gamer with Duchenne shares his own story after watching The Remarkable Life of Ibelin on Netflix. “We weren’t as rare as you think. WoW was the community I needed…
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Major concerns over the future of adult neuromuscular care in Northern Ireland
We have joined forces with Muscular Dystrophy UK and Spinal Muscular Atrophy UK (SMA UK) to raise concerns of people living with muscle wasting and weakening conditions as a result of potential significant changes at…
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Getting A Disabled Facilities Grant – My Experience
I might be able to run an organisation, but I’m dreadful with paperwork. This meant that getting a ceiling track hoist put in was quite a considerable workload. Whilst I had a gantry hoist in…
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Travel Tips for Disabled Travellers
These travel tips are central to how I plan and organise my travel. They help me make sure I have everything in place. This means if there are any issues I have a plan to…
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Private Renting
Private renting involves paying a private landlord money – typically every month – to live in a property they own. To find privately rented properties you can look on estate agent’s and property websites and…