Featured
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Research Unravelled: The Psychological Burden of Neuromuscular Diseases
Having a neuromuscular condition presents a lot of challenges: that goes without saying. But for all of the interventions, treatments and clinical concerns, one of the difficulties which often goes unaddressed is mental health. When…
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Major concerns over the future of adult neuromuscular care in Northern Ireland
We have joined forces with Muscular Dystrophy UK and Spinal Muscular Atrophy UK (SMA UK) to raise concerns of people living with muscle wasting and weakening conditions as a result of potential significant changes at…
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Getting A Disabled Facilities Grant – My Experience
I might be able to run an organisation, but I’m dreadful with paperwork. This meant that getting a ceiling track hoist put in was quite a considerable workload. Whilst I had a gantry hoist in…
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Travel Tips for Disabled Travellers
These travel tips are central to how I plan and organise my travel. They help me make sure I have everything in place. This means if there are any issues I have a plan to…
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Private Renting
Private renting involves paying a private landlord money – typically every month – to live in a property they own. To find privately rented properties you can look on estate agent’s and property websites and…
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‘Who Cares?’ – Hiring A PA Pros & Cons from Sanjeev
My name is Sanjeev and I am a journalist, producer, and development worker for Pathfinders, with Duchenne Muscular Dystrophy. Like many with a neuromuscular condition, I rely on other people like carers, personal assistants, family,…