General
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Bone Health Guidance Video Launch
Duchenne and Bone Health: updated guidanceBone health is often overlooked in adults living with Duchenne muscular dystrophy –but it’s essential. To help explain its importance, we’re sharing some guidance in theform of short, animated videos.…
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Social Care Campaign: Pathfinders Blog Post
The Social Care Campaign. Why now? To illustrate why we have launched our social care campaign, we asked various members of our community to share their experiences of social care. First, Sam, our Research and…
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Self-Reliant Independency with DMD in Japan
When it comes to discussing muscle-weakening conditions, it’s easy to only think about local impact, such as accommodations available in your town, city, or country. But individuals with muscle-weakening conditions exist all across the world,…
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UpLift Action Hoists in Hotels Review
An Insight Into the Day Our UpLift Team’s ACTION event to get people involved in campaigning took place on Saturday 18th October at The University of East London’s Sustainability Research Institute. Combining workshops and presentations…
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My Life with Ventilation: A Cripping Breath and Pathfinders Event
In popular culture, ventilation—or having air provided to your lungs with support from a machine—gets a bad rap. In movies and TV shows ventilation is often shown as a last-resort option for those who are…
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The Drop In
Launching: The Drop In – Peer-Led Social Meet-Up We’re excited to announce the launch of The Drop In, Pathfinders Neuromuscular Alliance’s new monthly social meetup for anyone with muscle-weakening conditions, carers, PAs, and friends! Our first session kicks off online on November 12th, from 6–7pm—and you’re invited. Why…