General
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Research Unravelled: What is test-retest reliability, and why does it matter?
Maintaining a good life balance is a huge task. The demands of daily life from family, to career ambitions, to carving out your own leisure time, are made even more complicated when you have a…
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Research Unravelled: Sleep disorders in neuromuscular diseases
We can never have enough sleep! Although some of us might burn the midnight oil because of the demands of daily life, sleep isn’t just for helping us feel rested: it actually repairs our bodies.…
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Forced into a Care Home: This Could Have Been Me
BY SARAH ROSE, Chair of Trustees of Pathfinders Neuromuscular Alliance When I read about Lucinda Ritchie, a 33-year-old disabled woman moved to a nursing home against her will, I felt something deeper than concern. I…
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Bone Health Guidance Video Launch
Duchenne and Bone Health: updated guidanceBone health is often overlooked in adults living with Duchenne muscular dystrophy –but it’s essential. To help explain its importance, we’re sharing some guidance in theform of short, animated videos.…
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Social Care Campaign: Pathfinders Blog Post
The Social Care Campaign. Why now? To illustrate why we have launched our social care campaign, we asked various members of our community to share their experiences of social care. First, Sam, our Research and…
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Self-Reliant Independency with DMD in Japan
When it comes to discussing muscle-weakening conditions, it’s easy to only think about local impact, such as accommodations available in your town, city, or country. But individuals with muscle-weakening conditions exist all across the world,…