Alex James interview – A Year On

Development Worker Sanjeev Mann has a chat with Alex James about all things music, current releases, Duchenne Muscular Dystrophy, plans for the future as well as aims as a musician.

Trustee Board: Recruiting for condition-specific representatives

Lucy Watts with assistance dog Molly

Since we became Pathfinders Neuromuscular Alliance, we’ve thought a lot about how to ensure that our trustee board brings the skills and experience we rely on, while also representing as many of our members as possible. We already have an excellent board of trustees, but as a charity representing the wider community of people with […]

Welcome to the Pathfinders team Adam!

Adam Langley, a headshot of a white man with short brown hair and black glasses

A very warm welcome to our new employee Adam Langley. he will be joining us very soon as Social Media and Digital Creation Associate on a full-time basis for 6 months. You probably recognise the face from a recent Pathfinders event, Adam hosted a gaming event alongside Ryan a couple of months ago. Here is […]

Congratulations to Claire D’all! You’ve won our June Monthly Honours!

Claire is 26 and has been recognised for sharing her story and experiences through her blog and public speaking. She has Congenital MD and has recently moved into her own place. “I started my blog in October 2016 however I had a security issue with my blog last year, so I had to restart it […]

Comedy & Cocktails – a Pathfinders Fundraiser

Pathfinders is delighted to announce a night of comedy and cocktails on Thursday 10th June – headlined by Britain’s Got Talent winner, Lost Voice Guy – the first stand-up comedian to use a communication aid. Tickets are available now Our work relies on fundraising in order to keep doing what we do – and you […]

Mental health, Jamie Hale (part 2)

Planning my day for good mental wellbeing. In yesterday’s blog I talked about having struggled with depression and adapting to disability, and how I slowly got on top of, and overcame, aspects of it. This article is less about mental illness, and more about mental health – because we’ve all got that. If I want […]

Mental health, Jamie Hale (part 1)

Mental and emotional health are something we all have – and something we all need to look after, protect, and develop. Whether you’ve got what is defined as a ‘mental illness’ or not, you’ve still got your mental health. I am currently in therapy. I get support from an organisation called London Accessible Independent Psychotherapy […]

Mental health, Ryan Dack.

Before we get started. I want to make it clear that things improved – I got “better”. Mental health is nothing to be ashamed of and we should normalise talking about it. Here’s my story. My struggles with mental health started midway through college. In 2011 I was heading back from a day trip to […]

Pathfinders’ Online Event Project – WE NEED YOU!!

Pathfinders are looking for young people with DMD to be part of a project to put on their own online event!  Do you have a hobby you’d like to share? … or are you passionate about something and you’d like to tell people about it? Do you come along to our events and think you would like […]